Common Things at Last
For now, nothing more than the public diary of an anonymous man, thinking a few things out.
Wednesday, July 30, 2008
Attention Microsoft Programmers, or Influential Competitors
So, please, People Who Know More About Computers Than I, if such a capability already exists, please let me know. Consider this a bleg. And please, Microsoft Programmers Or Their Influential Competitors, if such a thing does not exist, please make it do so, quickly, so everyone else has to make it do so too, and then I’ll get it in my next computer when I buy it in a few years – but remember, you’ll have to let me know that it’s been put in, so don’t forget. Thank’ee much.
Sincerely,
J.
Friday, July 25, 2008
A Wide Gulf
Labels: Christianity, mythology, Neil Gaiman
A Strange Season
Meanwhile, I have become beleaguered as well. Yesterday, lying on the bed in the hotel room we ended up scoring for free on the night of our anniversary celebration, I felt the room begin to spin. Only once or twice did it go round, and then it was over, but it was alarming. Rising, I realized that I didn’t feel quite right in the head, and I haven’t since. My head spins seem to be related to the motion of getting up or lying down, and it’s more common when I am lying down. Luckily, my mother is office manager for a neurologist. When I called him after hours yesterday, having mentioned these odd symptoms to my mother late in the day and getting her imprimatur to call her boss, he dashed away my apologies, saying something like, “No, you are not allowed to apologize – you are a member of an honorable family that are good friends of mine. You are welcome to call.” When I explained my symptoms and answered his diagnostic questions, he said I was likely suffering from something in my inner ear, not my brain, but that I should get an MRI anyway, just to be safe. So off I go tomorrow, to relieve my wife’s (and my own) lingering fears that I might have a brain tumor or a stroke, that she will not be left alone at the end of this strange cool summer that we have spent fearing for her, not for me.
Labels: endometriosis, fertility, hospital, IVF, MRI, pelvic abscess, surgery
Monday, July 21, 2008
The String Has Been Cut
Kay’s condition is pretty good. A few days ago her spirits received an uplift when we were called by Dr. Hilgers’ office to let us know that the second bacteria in her abscess had been identified, and that the Flagyl she was already taking orally would kill it. Up to this point, knowing only that the E. Coli was being taken care of, we were uncertain that the second, as-yet-unidentified, bacteria was going to be destroyed. They had told us that the Flagyl was likely to do it, but not knowing the identity of the bacteria, they couldn’t be sure until they received a positive identification. As the days stretched on, we were both worried and mollified, worried, because we weren’t sure whether the delay was caused by the slow growth of the bacteria (which we assumed could only be good) or their inability to find something that would kill it (which we assumed could only be bad); mollified, because the output of the drain both lessened and became less yellowish-brown, more clear, with a pink substance we were told was new tissue, white blood cells, and other signs of a return to normality. Clearly we are not really sure how bacteria cultures are accomplished. But however it’s done, it’s been done, and the infection is at bay, if not positively defeated.
So effective has Drs. Hilgers and Fitzgibbons’ effort been, in fact, that the drain’s outflow has dropped beneath the magical number of ten cc’s per day (cc’s are apparently equivalent to milliliters). Once beneath that number, said Dr. Fitzgibbons, the drain could come out. It attained that level on Thursday, at which point Kay called him, and he contacted a local surgeon to remove it. That local surgeon was leaving for vacation, but asked a colleague to do it. This colleague, whose odd name I will not repeat, because I am about to make fun of it, but the oddity of which can be hyperbolically approximated by the pseudonym “Dr. String Barracuda,” was available today, Monday, and, after having been needlessly warned by Kay, as she had been told to warn the person taking it out, to “cut the string,” thus releasing the coil that held it in place, removed the thing out without incident. The extra time with it in did cost Kay another few days of mild discomfort, and some lost sleep as she does not sleep naturally on her back, but it also afforded us the added satisfaction of knowing that the level of drainage did not go up. It has, in fact, not gone above around seven per diem since then, implying that the infection is properly finished. She will, however, watch the leftover wound – small enough to be only bandaged – closely, to make sure there is no excessive drainage, and plans to continue taking her temperature well after this entire project is over, as fever seems to be a good indication that the body is up to something that is causing it exertion, whether or not it is obvious on the outside.
Dr. Barracuda and Kay chatted about how she had gotten to this point, and he did worry her some by his surprise that Dr. Hilgers was using GoreTex to reduce scarring. Just now, in fact, I went into our bedroom, where I found her sitting in front of the TV with worry stitched into her face. I reminded her, as I reminded her earlier, that Barracuda is not a fertility doctor and has no previous experience doing or exact knowledge of what Hilgers has been doing, with some success, for many years. Presumably, had GoreTex not, in the past, precluded adhesions from forming post-surgically, Hilgers would not be wasting his time with the stuff. I also reminded her that Dr. Fitzgibbons, the chief of surgery at Creighton, is aware of and accepting of what Hilgers does, and has said that he uses internal GoreTex bandages all the time. Back when we were in Omaha, Dr. Fitzgibbons said, specifically, that he would have no trouble removing the bandages when we came back. These reassurances had their good effect, but more will undoubtedly be needed, for worry with Kay is like a persistent army that lays siege to her piece of mind, fortified howsoever it may be, and will not be dislodged without a determined assault on his supply train, or an end, altogether, to the war.
We are due to arrive again in Omaha on the 30th of July, with the 31st reserved, we assume, for a pre-op visit, and the surgery scheduled for the 1st of August. Assuming all goes well, and assuming the surgery is able to be conducted laparoscopically (there is some potential that it will become a laparotomy, mini- or otherwise), we will head for home on the 3rd or so, with just under two weeks to prepare for the beginning of the school year. Whether Kay will start on time or not, or as a full-time teacher or not (we are lucky in that, childless and with some help from our families, we can afford to do either), depends on the outcome of the surgery (which will be reported here), as well as on a conversation she will have with her school principal, a woman sympathetic to her because of similar fertility ordeals she underwent herself, some years ago. One way or another, we hope for things to continue looking up, so please place or keep us in your prayers.
Labels: endometriosis, fertility, H. P. Lovecraft, hospital, IVF, Neil Gaiman, pelvic abscess, surgery
Sunday, July 13, 2008
We're Home
The nurse, who came from Coram Specialty Infusion Services, was very friendly and professional. She was entirely unfazed by the abscess – beyond feeling bad for Kay that it had happened – saying that these things happen and are easy to solve. When we said we didn’t know what the second bacteria causing the abscess was (the first is e. coli – very common and nothing to worry about once identified, she said), she speculated that it might be a type of staph infection from the skin. No matter how much they do to clean the surface of the cutting area, she told us, sometimes things survive. Kay lamented that she forgot to wash with Dial antibacterial soap before the surgery, but I figure that if the iodine and things they use in the OR didn’t do it, store-bought bar soap is unlikely to. Still, would have been better to be safe than sorry, I suppose.
We are likely to return to Omaha in about three weeks, when Dr. Hilgers and Dr. Fitzgibbons (the chief of surgery at Creighton) will remove the Gore-Tex bandages. By that point, the course of anti-biotics will be over (the one being given via IV will end on Tuesday), and, we hope, the drain will have been removed. Kay is doing pretty well overall, though she is suffering some minor discomfort from the drain – when the nurses ask her to list her pain on a scale from one to ten, she usually says one or two. Her taste buds are also a bit discombobulated, we think as a result of the antibiotics. All told, we will be glad when the bandages are out and this part of the process is over. We can only hope that the inflammation from the abscess has not undone the progress of the surgery, but we won’t know until we go back in August.
Labels: endometriosis, fertility, hospital, IVF, pelvic abscess, surgery
Thursday, July 10, 2008
Some Reading
Labels: C. S. Lewis, Emily Bronte, Neil Gaiman, R. L. Stevenson
Some Minor Relief
I responded to this novel concept by reassuring her: no, they identify the bacteria by letting it grow until it identifies itself. But there was a small stab of horror within me as I said this, because I frankly didn’t really know how they do it. I know there’s a disk of sheep’s blood and that the stuff grows on the blood, and that’s about all I knew. I wondered, could Kay be right that this is how they do it? After all, shouldn’t a microscope do the trick? – what needs all these days of growing? Finally, when the nurses came in to hook Kay’s PICC line up to the antibiotic bag, I decided we had to ask. Turns out, I was right. The stress melted out of Kay when we heard this, and I pray that she will sleep better tonight as a result.
Labels: endometriosis, fertility, hospital, IVF, pelvic abscess, surgery
The Waiting Game
Our doctors have been very good to us. Dr. Hilgers comes by every day to keep us up to date, even though there has not been much to tell in the past few days. He is always upbeat and always willing to answer the questions he can. There is none of the condescension in him that one sees so often with doctors, though he is always confident, in an understated way. Kay likes him quite a bit, as do I, and all the nurses speak quite highly of him. (This abscess, incidentally, is apparently the third time he’s seen one in twenty-five years of doing this surgery.) The GI surgeon with whom he has been consulting, and who has been very reassuring that they will fix what ails Kay, comes by every two to three days, and a Hungarian doctor from the radiology department (they put in the pump) has come by on a number of occasions to make sure the hand grenade is working well.
The wait comes from Dr. Hilgers and the GI surgeon needing more information to decide whether they want to take the internal bandages out sooner or later. On their own, Gore-Tex bandages are not a problem – they are used because they are non-allergenic, and their use is fairly common, from what we’ve heard. But as an artificial mesh, they are attractive to germs, and once the germs are in the same region, there is a chance they can colonize the Gore-Tex. Once they do that, they will be protected from antibiotics, which can only reach the abscess through the blood stream. The removal of the Gore-Tex is thus desirable, but the surgery to take them out could stir up the infection dangerously. Therefore we play the waiting game: suction and then reduce or destroy the infection with antibiotics, then go in safely to remove the Gore-Tex at a later date. What that later date will be depends, probably, on what the culture turns up and how long the appropriate antibiotics take to destroy it. It will not be more than three to four weeks, we’ve been told.
The problem now is to wait without getting too down. Kay is has been down for the better part of two days, and doesn’t know whether she wants to leave more or be well more – well, she knows she wants to be well. But she doesn’t want to be here for another week or two while it happens. We are able to go outside, but Kay is confined by doctor’s orders to the hospital grounds. There is some talk of her going home with the grenade – either to the hotel or really back home – then coming back for the Gore-Tex-removal surgery, but until they know what kind of bug or bugs she is fighting, they don’t want to let her go. Ultimately, we just want her to get better, and we’ll do whatever they want us to do to make sure that happens.
Labels: endometriosis, fertility, hospital, ileus, IVF, pelvic abscess, surgery
Monday, July 07, 2008
An Annoyance
aaaaaaaaaaaaaaaaaaaaaI get this:
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aaaaaaaaaaaaaaaaaaaaaWhich obviously makes more sense.
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If Blogger has in fact fixed this problem with some work-around, I make no mea-culpas for not doing my research, as their block quote button has not incorporated it, and a block quote button that doesn’t block quote seems fairly useless to me.
If the fault lies with html code, and not Blogger, then I guess I’m sorry. But if somebody’s invented the i-Phone, not to mention this tablet I’m using, couldn’t someone figure this out, considering just how many are blogging today?
Update: This is not to mention that in the “Compose” window of the Create Post function, a space between the main text and the first line of a block quote is meaningless until it is actually placed manually in the “Edit Html” window. Why? And the same space below the block quote is always smaller than the space above it. Why? None of this seems rational, though no doubt code writers – and I am ignorant of their craft – know the reasons.
Update: Of course, now that I’ve pasted this into Blogger (which can’t do curly quotes or apostrophes, so I compose in Word), I’ve got to reformat the block quotes again. Sigh. I know, it’s the least of my worries, and the system’s free. Shut up and blog.
Labels: Blogger, blogs, computers, Microsoft Windows
Faith and Its Fluctuations
We finally began the process with Dr. Hilgers and the Pope Paul VI Institute, well over a year ago (perhaps a year-and-a-half ago), and things seemed to go well in the operation, though we knew it would be a difficult one, and by no means guaranteed success. But these last two weeks have been full of nothing but setbacks, it has seemed: a good first day followed by the somnolence of atalectesis; her revival and subsequent eating followed by vomiting and diarrhea; a bowel revived from ileus followed by fever and renewed coughing; plaintive hopes for pneumonia followed by revelation of the pelvic abscess. Now the less harsh procedure of the catheter and a dose of antibiotics is our hope, against which is juxtaposed the six-month colostomy. (This is not to mention the damage this kind of inflammation can do to ovaries, tubes, and uterus, which, along with the coughing, is for now a secondary worry.) I hope our beleaguered troops hold the line here.
The military metaphor arises because I have been reading the first volume of Shelby Foote’s The Civil War. I am not alone in having Lincoln as my favorite president because of his thoughts, expressed in his profound and serious words. I was too poor a philosophy student to say whether Lincoln’s thoughts were particularly original, but the humility and cadence of their expression is moving in the extreme. There are two writings that Foote quotes, in each of which Lincoln addresses situations of much greater extremity than that in which Kay and I are embroiled. In speaking to a Quaker woman who called on Lincoln to show her support for his having issued the Emancipation Proclamation, he said,
Kay and I are not so much instruments here, not so much operating as being operated upon (quite literally, in her case), but still her subjection to treatment and my support for her can be said to be our “efforts,” and certainly our “war” would have ended before this had we been allowed our way. And our little case is as worrying to us in its threat to the world for which we are responsible – our parents, our marriage, each other – as the horrendous losses of Antietam were in their threat to the vast arena for which Lincoln was so tragically and movingly responsible.We are indeed going through a great trial – a fiery trial. In
the very responsible position in which I happen to be
placed, being a humble instrument in the hands of our
Heavenly Father, as I am, and as we all are, to work out
his great purposes, I have desired that all my works and
acts may be according to his will; and that it might be so,
I have sought his aid. But if, after endeavoring to do my
best in the light which he affords me, I find my efforts
fail, I must believe that for some purpose unknown to
me, he wills it otherwise. If I had had my way, this war
would never have been commenced. If I had been
allowed my way, this war would have been ended before
this. But we find it still continues, and we must believe
that he permits it for some wise purpose of his own,
mysterious and unknown to us; and though with our
limited understandings we may not be able to
comprehend it, yet we cannot but believe that he who
made the world still governs it.
Lincoln also wrote a private piece, left on his desk but apparently not intended for publication. It was rescued by his secretary John Hay, being published later. In it, Lincoln attempts in effect to reconcile the existence of men such as Bishop-General Pope, and his prayers, with the equally fervent Northern clergymen, and their many prayers:
The will of God prevails. In great contests each partyThis passage is perhaps less applicable to Kay’s and my situation: there is no one, after all, praying against us. But the enemy that (or who) has entered the field has not been prevented from bringing his soldiers against us. The contest proceeds. We can merely fight by our best lights and pray that, supposing it is His will on earth and in heaven, we receive our daily bread, and that our trespasses will be forgiven us. Father, if Thou wilt, remove this chalice from us: but yet not our will, but Thine be done.
claims to act in accordance with the will of God. Both may
be, and one must be, wrong. God cannot be for and
against the same thing at the same time. In the present
civil war it is quite possible that God’s purpose is
something different from the purpose of either party;
and yet the human instrumentalities, working just as
they do, are of the best adaptation to effect his purpose.
I am almost ready to say this is probably true; that God
wills this contest, and wills that it shall not end yet. By
his mere quiet power on the minds of the now
contestants, he could have either saved or destroyed
the Union without a human contest. Yet the contest
began. And having begun he could give the final victory
to either side any day. Yet the contest proceeds.
___________________________________________________________________
Thanks, by the way, to The Abraham Lincoln Association, as well as to that perfidious academic institution holding the electronic version of their The Collected Works of Abraham Lincoln. As their version contained some confusing punctuation – perhaps in the manuscript sources? – I have made some changes to match Foote’s version, on pp. 709-10 of Volume I of his work.
Labels: Abraham Lincoln, American Civil War, endometriosis, fertility, hospital, ileus, IVF, pelvic abscess, surgery
Sunday, July 06, 2008
Worst Day 1.2
Labels: endometriosis, fertility, hospital, ileus, pelvic abscess, surgery
Worst Day 1.1
This issue has come back up, however, and the diagnosis seems to have been wrong, or at least incomplete. Kay’s throat clearing has continued, turning into a cough, deep and regular, but productive of no phlegm. Her temperature, having fluctuated all week, has gone up to 101.6, which is quite high, and her white blood cell count is high again, I believe for the third time since the surgery. There are two possibilities, one being that she has come down with pneumonia, which at this point would be a good thing. The worse alternative is that she has some kind of abdominal abscess or infection or inflammation (not sure how mutually in- or exclusive these things are), for which reason the follow-up procedure is going to go on as planned, if not sooner. They’ve ordered another chest x-ray and a CT scan to explore both possibilities, and if something abdominal is indicated, they’ll go in today, instead of tomorrow as planned. (In this case, the coughing proceeds from something else entirely, and is a secondary worry.)
Labels: endometriosis, fertility, hospital, ileus, surgery
Saturday, July 05, 2008
The Two Worst Days, Part I
Labels: endometriosis, fertility, hospital, ileus, IVF, surgery
Diversions
Gentlemen Prefer Blondes was exactly what we needed the day we watched it, I believe Wednesday. We needed silly escapism, and that’s what we got, though daft and mercenary never reach so near the sublime as they do in Marilyn Monroe’s Lorelei Lee. The IMDB quote list for the movie doesn’t seem to have the ones I laughed at the most, though of course now I’d have to re-watch the movie to remember them. These, though, will do:
Daft (said of a diamond tiara):What I also found interesting about the film was the dirty sensibilities that were there for those who wanted to find them, censors be damned, such as the sly one-liner uttered by an Olympic athlete when asked which girl – Monroe or Jane Russell – he’d save from a sinking ship: “those girls couldn’t drown,” reminding me of my father’s advice to lay hold of Dolly Parton should I ever find myself on a leaky vessel with her. These sneaky one-liners seem to have been all over certain films of that time, along with an absolute fascination with adultery: cf. The Seven Year Itch (1955), The Apartment (1960), and A Guide for the Married Man (1967). While adultery is almost always rejected in these films, they seem like a foreboding, a straining against the reins, that makes the advent of the Seventies and Eighties unsurprising. The one-liners I enjoy – I was raised on dirty jokes and can find nothing wrong with them, within some limits; the clear interest in adultery I regard with less comfort and no sympathy.
“You DO wear it on your head. I just LOVE finding new places to wear diamonds.”
Mercenary (in conversation with the father of her fiancé):
Esmond Sr.: Have you got the nerve to tell me you don't want to marry my son for his money?
Lorelei Lee: It's true.
Esmond Sr.: Then what do you want to marry him for?
Lorelei Lee: I want to marry him for YOUR money.
The only other observation I have on the film is this: Marilyn Monroe is a clearly superior screen bimbo to poor Jayne Mansfield, depressingly similar as were the eventual denouements of their lives.
Labels: endometriosis, film, hospital
Our Current State – Pretty Good, Overall
Thus we are healing and improving. Kay’s enemies now are a relatively slow and sometimes painful digestion process, despair, and boredom. None of the doctors seem worried by the first, and it is my opinion that her digestion will improve as her GI tract realizes it’s back on the clock. The second is mild, as despair goes, and is due to missing home, wondering when she’ll ever feel normal, and fear that the follow-up procedure will restart the ileus. There’s no real way for me to alleviate this, other than to stay positive, iterate her successes so far, and remind her of the doctor’s assurance that laparoscopic surgeries never result in ilei. I thought that Kay might also benefit from getting out of the hospital, and so suggested a jaunt through the city for half an hour in our car, but our nurse said it wouldn’t be allowed, and one of the doctors disclaimed responsibility, saying only the doctor who had admitted her could ok that. That would be Dr. Hilgers, but we usually only see him in the morning, and it doesn’t seem right to ask our nurse – who said the doctor would not say yes – to ask him for us. We’ll wait until tomorrow, when we’re still likely to be here.
Labels: endometriosis, fertility, hospital, ileus, surgery
Thursday, July 03, 2008
Pseudonymicon
Labels: blogs, pseudonyms
A Quick Note on Dr. Hilgers
Dr. Hilgers, who has been in every morning, came in today when I was not here, having left very early to pick up my dad at his hotel for Mass and then a trip to the airport. Dr. Hilgers and my wife had a good conversation. She mentioned this doctor and his extremely poor bedside manner and how it had jarred her, how she’s now imagining all her worst fears. He asked her to tell him what she was afraid of. Other than death, she’s afraid of a permanent nutritional IV – never being able to eat again. I think doctors have to strike a balance between needlessly informing patients of worst-case scenarios, thus stimulating their fears, and limiting their fears by setting the boundaries with a worst-case scenario. In this case, Hilgers rightly chose the latter, telling my wife the worst-case scenario would be a temporary colostomy – six months is the figure he put on it – because the small intestine always wakes up. It just does. He also let her know what the next step will be: tomorrow, if the passage of gas continues and the vomiting doesn’t come back, we’ll try the wet tray again. If she keeps it down, we’ll go to the dry tray. His attention to us, his apparent knowledge, his willingness to explain and answer questions, are all qualities we value highly in him. They’ve made an unexpectedly-difficult recovery that much more endurable for us.
Update: My wife and I have been reading this over before I post it (we’re no longer on the patio playing Scrabble – I’m winning by the way – as these postings always take longer than I think they will to write), and we’ve just realized that we’re not quite sure, now that we think about it, how a colostomy would allow her to go on while waiting for the small intestine to wake up. A colostomy replaces the large intestine, if we understand this correctly, because the large is concerned almost exclusively with disposal, which a colostomy bag can do, while the small is concerned with distribution of nutrients to the body, which a colostomy bag can’t do. Clearly we’ve missed out on some details somewhere along the line, but Dr. Hilgers will no doubt answer them for us when we see him tomorrow.
Labels: endometriosis, hospital, ileus, IVF, surgery
Wednesday, July 02, 2008
Surgery Update
Labels: endometriosis, hospital, IVF, surgery